HUGE CELEBRATION

Tuesday, August 6, 2013

I am going to start with photos.....

THE BIG REVEAL........

As of July 31, 2013.....DILLON DOES NOT HAVE TO WEAR HIS MASK ANYMORE and HE DOES NOT HAVE ANY MORE PRESCRIPTION PILLS TO TAKE!!!!!!

The blood work from Dillon's last visit in Denver finally came in and it revealed that his immune system is functioning at a level that can now tolerate being exposed to the environment.  He was/is so so so over the moon happy.  He is a changed boy.  He ran outside and took huge gulps of air.  He jumped on the trampoline with Luca and then went outside and played basketball (pictures above). Still, several days later, he puts his hand up to his face constantly (to adjust the mask)...but it is not there....habits become so ingrained.  He catches himself and laughs. 

A couple of poignant quotes from the day....

Dillon as he walked out the door to play outside....."I feel strange, this is weird, I almost feel naked."

Luca proclaimed in his ever so wise way....."My world just got a little bit better!!"

As we disposed of Dillon's remaining pills, Luca stated directly into the pill bottle....."You served my brother well but now you have to GO!!"

As promised, there was a ceremony around the mask disposal.....

 

Starting the bonfire.

Blaze is going strong

tossing in the nasty masks

see ya later masks!!!

they did not even burn....they just melted

I think that face says it all!!!

A couple of days ago it rained and I opened the windows in the house for the first time in over a year....Sean came home to the fresh smell of moist air in the house and he just cried.   Huge, powerful feelings over the simple things in life.  Ohhh the smell of fresh rain air INSIDE the house.

Yes, I still have to clean a lot....but not quite as compulsively (although with the windows being open there is sure to be more dirt ..thus more cleaning (hahaha).

It took 3 weeks to get the labs back that relieved Dillon of the blue burden (mask) and it seems impossible....but we are headed back to Denver this coming weekend to begin his 1-year post transplant appointments.

He will be starting school with his 7th grade class on September 3.  We covered most of the curriculum over the 5 months that we have been home so there is no real concern about him being behind.

You have never seen a middle-schooler so excited to start school....can you imagine :)))