Lovely couple of days...and this evening

Monday, June 11, 2012

Big D has spent the last 2 days at my parents' house.  He wanted a change of scenery (as he puts it) and I certainly needed a break from the constantness (is that a word???) of being with him.....he also informed my mother that he needed a break from me.  He actually told her...."Mama worries about EVERYTHING!!!"  My mom had a nice little chat with him that parents worry about their kids all the time no matter what, no matter how old, or how small the problem.  She told D about her worries for me and he was quite shocked at that....and amazed at the perspective...oh yeah, Nana is Mama's mom.

So he had a great couple of days there, which included plenty of mood swings, grumpiness, insomnia, and other stuff....but the beauty of me not having to be present for it was huge.  I know, that sounds terrible....but I think you can all appreciate the level of stress that is involved in just the day to day interactions with this kiddo....none of which are his 'fault' but they are exhausting and can become extremely frustrating....so the break was welcome.

He came home this afternoon having been well fed but ready for more.  A friend made us dinner tonight and there was a fabulous salad included, of which Dillon ate about half (mind you it was for 4 people...so that is a lot of salad).  He has these terrible sores in his mouth and on his tongue (chemo side effects) but he swishes with this numbing mouthwash and he chews very carefully and slowly but he eats and eats and eats....which is such a relief after the relatively large weight loss he had there at the beginning.

After our lovely dinner Dillon came and found me, requesting me to prepare his meds.  It was only 7 p.m. and we had just finished eating.  It was sooooo very  weird.  He usually tries to delay meds until the very last minute and then he is frustrated in taking them because he is tired and it takes him a while and...well you get the idea.   He informs us all that he is going to take them faster than ever and he asked us to watch.....usually he forbids anyone even in the same area of the house when he is doing this...so again....weird.  With his bright quirky little smile he says..."Nana and I found the PERFECT chaser for my meds."  He proceeds to get out feta cheese.  Seriously Dillon, feta???  Yes Mom, just watch.  So, he pounds down his meds, 1, 2, 3, 4 and then in goes a big ol' scoop of crumbled feta.  He chews and chews then swallows....motions for a cup of water...sips and sips...and BAM, done, just like that.  I wonder if those college frat boys know how awesome feta is after a shot of something strong...HAHAHAHA!!!

The 3 Buckley Boys are off for an evening stroll while I have some peace and quiet in my office.  The anxiety of "the night before chemo" has not reared its ugly head as of yet. Dillon and I agreed to actually head that off at the pass and he took an extra medication with his feta extravaganza to help him NOT get to the anxiety state that he has in the past.  He is SUCH a reasonable boy these days and learning every day what helps him to cope.  He hates an extra med but he knows that it can prevent the terrible terrible feelings that crop up in the late evening the night before a procedure...so he agreed wholeheartedly to take it.  WOW....again and again this child amazes us all.

Tomorrow....chemo #4.