Tuesday, September 11, 2012
The second part of Luca's birthday post is going to have to come at another time.
Today Dillon received radiation at 7:30 a.m. By 10 a.m. he was nauseated and throwing up. At 2 p.m. he got another radiation treatment and continued to vomit. At that point, they started IV fluids in the clinic and admitted him to the hospital for hydration with electrolytes, as well as a full menu of meds to help control the nausea. . Now, at 10 p.m., I sitting in a filthy hospital room on the 8th floor, which is where they treat kids with respiratory illnesses.....SERIOUSLY...my child who has a compromised immune system and is heading into transplant is stuck in this part of the hospital....I am NOT happy. I don't even want to take my shoes off to lie down and rest...that is how dirty the floor is, and I had to wipe off the tray table before I could set Dillon's water there because it was visibly dirty and sticky with a bright red substance. After all the talk about wiping and cleaning and sterilizing to prepare for BMT and we are here in this dirty room because they didn't have a BMT room open for us yet. I am angry and frustrated and worried about what Dillon could catch being in this room.
Because of the severity of Dillon's early-onset illness, Nana is on her way and will be here before the 2 p.m. radiation. D and I need some TLC and logistical support with the radiation transport.
It is going to be a verrrrrrry long night.
Hey Sherri, I found that you can accomplish a lot if you let the right people know. There should be a patient advocate of some kind that you can talk to. Dirty hospital room is horrible even if you are perfectly healthy! You have reason to be outraged! And no one else should have to endure such conditions. I hope you only have one night in that room and things get better. I, along with countless friends, continue to pray for you, Dillon and the whole family.
ReplyDeleteHugs, Jane
I am sending you positive energy to get through this. I am a lot amazed that they would do that to you guys, WTF. Stay strong. Love you both bunches
ReplyDeleteTry to remain calm and think that the mess you see is just a little mess and not germs. Sorry this had to happen at the beginning of this road but it did. Shake it off and keep positive even if it's just for Dillon since it's imperative he remain cool, calm and collected. Hugs, love and prayers..Aunt Marilyn
ReplyDeleteStay strong Shari! Let me know if I need to go kick some Denver Hospital butt!
ReplyDelete