Dillon's fever continued to rage. Last night it was up to 105 and he was miserable. The Tylenol that he was getting around the clock was hardly even touching the fever...it would go from 105 to 103 and just stay there hour upon hour. Every muscle and nerve in his body is activated...he shakes uncontrollably and his skin is so extremely sensitive that just the lightest touch causes him discomfort. Today they did more tests including a CT scan of his sinuses, chest, and abdomen to double check for some sort of infection source. Good news.....nothing showed up on the scan, nothing showed up in his multiple blood cultures, and nothing showed up in his stool or urine....so basically the answer is....
His body is working very very hard, it gets aggravated and inflamed, and some people get a fever in that situation. Dillon has been prone to fevers his whole life, so that is no surprise to me. When he was a toddler I used to say that he would get a fever if he stubbed his toe.....so they took my motherly knowledge and administered ibuprofen. In kids with compromised immune systems ibuprofen is a big NO NO because it kills off platelets (which are low already) so much so that it can be dangerous. The answer for Dillon today was that he got transfused platelets this morning, then got the ibuprofen, and then got more platelets this afternoon. They decided (with my input about his difficult fever history) that the risk of platelets getting depleted was lower than the continued extreme fever. GOOD NEWS.......the fever is controlled right now. I am crossing my fingers that it continues to stay controlled overnight so this poor guy can get some rest. For the past 3 nights he had such bad chills and sweats and utter discomfort that he was not able to sleep.
His mouth and throat and esophagus continue to produce copious amounts of mucus, which cause him to cough and gag and subsequently vomit....but it is not bleeding at all any more and the pain is almost completely resolved.
His nausea is also much better...not completely gone but controlled enough that it is not consuming his attention each day...it is in the background now I would say.
So, after a rough few days we are currently on an upswing. Even if this only last for the afternoon and evening it is a much needed respite from the intensity for all of us.
Sean and Luca went to the carnival in Santa Fe last night....don't they look happy?? Dillon and I are really really looking forward to their arrival on thursday evening.
Keeping you in our thoughts, always. Sending you strength and light!!!
ReplyDeleteMuch love,
Molly, Woody, Holden & Maisy
That pesky fever had to of been a bit scary I'd think. Sure glad you had the input for the ibuprofen and that it worked. As always prayers coming your way...Love Aunt Marilyn
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