Tuesday, February 12, 2013
Dillon's labs are back. The vitamin D has increased by 3 fold, which is just a bit below normal, so we get to reduce the dose of the supplement for the next month...then there will be a recheck. The zinc has normalized as has the calcium.....Yahoo....a few more pills removed from the pill box. He is down to 22 pills a day!!!! His bone density will be rechecked when we return to Denver in March and a decision will be made at that point regarding continuing the vitamin D with calcium. Another concern is that he has not grown in height in 6 months. They don't start to really worry until growth has not resumed in 9 to 12 months....so that will be something that I watch very closely.
We check into the OR bright and early tomorrow for the port and central line removal. He is SUPER excited (no I am not being sarcastic). The prospect of showers, baths, and swimming is keeping his mind positive and calm in regard to this procedure. I will let you know how Big D is doing tomorrow evening.
Oh yeah, the other cool thing we get to do tomorrow is drop off a big bag of unused/discontinued medications at Walgreens. We are cleaning out the cabinets and all of the medical supplies that we won't be needing anymore after tomorrow morning and we get to drop those off at the hospital for the Doctors Without Borders program. This is very therapeutic, extremely cathartic, and amazingly liberating for this sweet, powerful, courageous boy.
that sounds gret good job mom and Dillon hang in there with the procedure and good of youto think of the DWB for he meds. t
ReplyDeleteGood to hear about the zinc, vitamin D and calcium. Heck I take D and calcium off and on so I don't get low. You never did answer the lbs vs kilo's from the last post. Waiting to hear of the easy removal of the port....Heck his body has been working overtime just to fight how could it grow in height! Marilyn
ReplyDeleteI can't even imagine how overjoyed you must be at the little steps being taken!!! Each one seems little, but they are HUGE!!!! I pray that the steps continue to be flawless and make going home easy and sweet!!!! YAY!!!
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