Adjustments

Wednesday, May 30, 2012

Today showed me what a huge adjustment we are all needing to make.  I found myself thinking at one point...."I cannot wait for things to be normal again."  Then I realized that things are changed...FOREVER.

D's biggest struggles today were taking his pills.  He has to take 7 pills twice a day.  He just recently learned how to swallow his tiny little allergy pill and now he has to chug down enormous amounts of water and juice to get his pile of pills down.  This usually leads to gagging, occasional vomiting, tears, bloated cramped stomach, frustration, and fear.  I am scouring the internet for more ideas on how to make this easier.  I have located a product that is a flavored spray gel.  You coat the mouth so you taste the flavoring instead of the pill and then supposedly the pill just slides down instead of sticking and beginning to melt on the tongue.  I cannot decide if I should buy it or just keep on cheering Big D on in the hopes that he will learn a magic technique that works for him.  Maybe he will "get used to it."

People keep saying that....."He will get used to it."  Really, do you think so...a 10-year-old boy will get used to feeling lousy, nauseous, exhausted, anxious, unable and uninterested in playing, living around a schedule of doctor appointments, frustrated, scared, and angry....I THINK NOT!!!!

The Pickle did enthusiastically eat 3 meals today....not large meals but a semi-regular solid food consumption.  I cannot tell you how distressing it is to see my child not able or willing to eat.  Someone asked him what his favorite foods are the other day because they are making foods for our freezer so we don't have to cook, and the poor child could not come up with anything.  His little brother was rattling off things that Dillon tends to enjoy, all the while Big D sort of scowling at the mere mention of food.  So, today when he actually ASKED for lunch, I rejoiced. 

The long road of adjusting to our "NEW NORMAL" has begun.