Tuesday, October 2, 2012
As you all know, the previous few days have been difficult for Dillon with fevers and such.
Well that all came to a head yesterday with him actually losing consciousness, dangerously low blood pressure, fluid overload throughout his body, decreased urine output, yellowing of skin and eyes, an abscess on his backside that is extremely painful and infected......
He is in the ICU. He is safe and stable, although still in a precarious place at the moment. The doctors are working very hard to correct the many and complex issues that have come about in the past 24 hours. This morning at rounds there were 20 professionals involved...many minds working together to share their expertise and get Dillon back on track.
He is terrified, in extreme pain, having trouble breathing and needing oxygen, the list is long....but please know that he is safe right now....not "out of the woods" but he is stable.
Right now the issues are extreme fluid retention (he has gained over 8 pounds in the past 1-1/2 days) in the setting of low blood pressure and decreased kidney function. If they just gave him meds to excrete the fluid it would overload his kidneys and they might shut down, and his blood pressure could drop again to dangerously low levels. The danger of not getting the fluid excreted is risk of pneumonia with fluid building up in his lungs and his heart is working very very hard to pump blood to his body. His liver is also not quite functioning properly and that is a huge concern in the face of the bone marrow transplant; his bilirubin is very high so his skin and eyes are quite yellow. His kidney function is not up to what it should be. His fever continues, although not as high as a few days ago, and they do believe this is because of the huge, terrible, raw, raging abscess on Dillon's butt. They are concerned that the infection has moved into Dillon's blood and he has sepsis.....
Sorry I am not being more descriptive or explanatory. I am exhausted and just out of energy. As things resolve or treatment changes I will let you know. Sean is here with me. I called him yesterday evening when Dillon lost consciousness and asked him to get here as soon as possible (he was here by 11 a.m. this morning, it is a 7-hour drive). One or both of my parents will deliver Luca up here in the next few days (probably Thursday evening). Sean and Luca had planned on being here this weekend already, so this is just a little alteration in the original plan.
I am so very grateful to have my husband by my side and the way Dillon's eyes lit up when he realized his daddy was in the room was priceless.
Thank you for the update, Shari. I've been checking the blog every hour (or less) on the off chance you'd have a moment to post something. We are sending our thoughts and prayers every moment. Much love, Trudy and the Moons
ReplyDeletepraying for you dillon, uncle todd and Miel and others on our list, stay strong don't give up, find that light I was telling you about hold that special image that takes away all the yuck you feel and focus on that, you too shari, find a moment, breath and feel that light that we are surrounding you with. we love you and I am so glad sean made it there safe and is there for support.
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Much love and many, many healing blessings to you and Dillon. I'm so glad that your husband is there with you now. You're a brave and courageous woman and my heart goes out to you and your sweet boy.
ReplyDeleteFor the Sikhs, this is a special miraculous time of the year and many of us are including Dillon in our prayers. May this light surround and heal Dillon.
Guru Nam, thank you for the prayers in your Sikh community. We can feel the light, healing, support, and prayers coming our way.
DeleteI've had a feeling things were in the ditch and I'm praying harder than ever for the turn around. I've been through the kidney/heart/lung merry go round with both Jen and Missy so I know first hand how scary it is. So grateful Sean is there for both of you. Much love and many prayers coming your way. Love Aunt Marilyn
ReplyDeleteAunt Marilyn, your continued notes are just a blessing. We love the support and energy....we can feel your prayers and love. Keep them coming.
DeleteI can only imagine everyone's exhaustion and frustration right about not. I know it's not possible to have more people near to help you out due to distance and such, so you need to be sure you are taking care of you and your mental health as well. Please tell Dillon that he has so many angels and prayers surrounding him that he has no choice in the matter, he WILL get better, we all refuse to hear any other option! Whenever I think of him, I see him completely engulfed in the most beautiful gold and white light... that's all helping him stay strong.
ReplyDeleteLove and hugs sent your way, Jen
Jennifer, thank you for your support and reminding us to keep ourselves healthy and well. It is so easy to forget that piece of this crazy convoluted puzzle...so thank you. We feel your love and support, it is powerful.
DeleteThe entire United Methodist Church is praying for Dillon and family, God's grace and blessings on you during this horrible, difficult ordeal. Take care of yourself Shari and thank you for keeping us down here in NM updated.
ReplyDeleteJoann...thank you so very much!!!! Please thank the church for its continued support. We can feel the powerful prayers and loving support that are coming our way.
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