Tuesday, October 16, 2012
Yesterday was an extremely stressful day and emotionally it took me right back to the gut wrenching terror that accompanied Dillon's original diagnosis.
Yesterday morning Big D woke up with a swollen and tender neck and armpit on the right side....his neck was visibly bigger than the other side. This incited a panic in my heart....oh my God, swollen lymph nodes are what got us here in the first place. The docs came in and did a quick exam and they immediately ordered a CT scan of Dillon's neck and chest. They were being very vague about what they thought was going on and, after some very pointed questions from myself, they did say that they were nervous too and the CT was being done to rule out a recurrence of the lymphoma. I Lost it....I had to leave the room and have a good strong cry mixed with panic and fear. How could that even be possible??? That would mean the transplant completely failed and his old system revved up and took over. OMG...my parents are both here with the same terror running through their hearts and minds.
We had to wait several hours before the CT was complete. which included accessing Dillon's port...which raised up all of the old fear and anxiety for him about the needle insertion.
After a very high-strung day, the CT was completed and it was about 30 minutes later that the doc walked in and said.......the scan is clear!!!!!! Breathe Shari, take a breath.......I was almost faint with relief. A weight lifted off my heart in that instant and my belief that this process is going as it should and that the cure is well on its way was renewed.
Disaster averted....
ANC today: 3352
Baby steps of improvement again today. Only 1 episode of vomiting, fever never above 100, less coughing, and less diarrhea. They are changing another med from IV to oral...the first steps of getting ready to get out of here!!!
GO DILLON GO!!!!!
I keep thinking that no one can do this. And yet Dillon is doing this, and Sheri, and Sean, and Luca, and Grandparents, and all of the (often silent) support groups are doing this! Many prayers are coming your way. xxoo Jillian
ReplyDeleteYou may feel that you are silent but we see you,we hear you, we feel you....thanks Jillian!!!
DeleteSo they didn't actually know what caused the swelling? The scan was clear but is that the end to the looking? A little confused I guess. So happy Tom/Rose were there for you....
ReplyDeleteOh yeah....I meant to talk about that and a time crunch got the better of me....thanks. I posted a little more info for ya.
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