As you can imagine it is extremely hectic this morning. We got discharged at 3:30 p.m. yesterday. My mom and I had the lovely dinner that the Brent's volunteers brought up to us.....all the while sitting with the home care nurse for about 2 hours learning how to administer and care for all the IV stuff that we have to do. We got the home care delivery last night at about 6:30 and it was 4 huge boxes...it took 2 wagons to bring it all up to our room. It fills 2 cabinets and half of the fridge (the nutrition and fluids have to be cold). Talk about overwhelming.
We are off and running this morning trying to carve out a new routine with the pills, the IV stuff, the other care, Dillon's sick belly, etc, etc. I cannot even really put words to how complex and overwhelming the whole thing is.
For the next 2 weeks or so we have to go to the clinic for several hours each day for an IV med that we cannot do at home, as well as lab work and possible transfusions of blood products. WOW....busy busy busy...but still better than being in the hospital. Last night Dillon wanted to know....since we have so much stuff to do at home why did they not just leave him in the hospital. We discussed it and decided that even though it is a crazy routine we have to figure out...being on the couch, with our stuff, our bathroom, no nurses coming in and out at all hours....it is still WAY WAY WAY better than being in the hospital.
His symptoms are about the same as the past few days but I can see that he will progress more quickly at home. His first craving (which has been going on for a couple of weeks) was for green grapes...which I promptly ran out to get at 8:30 last night in a blowing snow storm. This morning, through his nausea, he is sitting up in bed gazing out the window and he keeps saying...."It is soooooo pretty. I cannot stop looking at it." AND he asked to take his pills with something other than water.....and I just so happen to have his favorite drink (limeade). One sip and he declared...."This is the BEST limeade I have EVER had!!!!" Gonna be feeling better before we know it.
Here are a few pics from yesterday's discharge. He was so very tired it was hard for him to show his excitement but I captured a couple of smiles that he let slip (hahaha).
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| Dillon and his favorite nurse....WE LOVE YOU MARISA!! |
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| Dillon resting at Brent's after the long trip up from the car |
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| Mama and Dillon just got OUT |
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| Getting ready to get the heck out of hospital |
And.....the view that Dillon cannot stop looking at this morning.....MAGICAL!!!
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| Winter blast started shortly after we got home yesterday. It is SO beautiful!! |
The response I will give to Dillon on why don't they just leave him in the hospital is this: He's just NOT SICK ENOUGH to stay!!! lol
ReplyDeleteThey have booted you out so you may recover in a bit more comfort and to start you on your new routine.
So happy things are progressing along nicely. Weakness and exhaustion are to be expected I would imagine and as long as he's getting lots of sleep, then he's going to be stronger every day!
FANTASTIC NEWS!!!!!!
ReplyDeleteStacy....thanks for the comment and the continued healthy nutrition for mtypes Santa Fe boys. You may not know just how HUGE a gift that is every single time you cook for them! Thank you from the bottom of heart. And tell your mom that Dillon is wearing the green and white hat and LOVES it!!!
DeleteWe are with you heart and soul every day. Sending all the positive white light we can your way.
ReplyDeleteMolly's parents, Holden and Maisy's grandparents.
I'm with Jen...you're on the road to recovery and that hospital is for someone who needs way more help from the nurses. Shari...I'm sure it's overwhelming and will be for awhile but it's got to be so much more rewarding knowing you're not on the sidelines watching but on the leading edge of getting Dillon well. So proud of the road you've traveled just wish we were closer to provide some relief for you. That view is so soothing and restorative to the soul. Get better Dillon...much love and more prayers of course. Aunt Marilyn
ReplyDeleteWe love you and miss you - so happy you are OUT! And that snow, wow - that was just put there for you Dillon, I'm sure of it, cos you're that special! Big love to you all xxx PS - still posting as Peace Siren (Frances, Ethan's mum)
ReplyDeleteHey Frances....thanks for the monthly cards and such!! You may not know just how helpful that is for us in day to day "operations". Luca is looking forward to your bike trip to the store with them :))
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