Day 62.....lets try this again

Cruising to the apartment

Tuesday, November 20, 2012

Wheewww....we made it.

Dillon was discharged yesterday afternoon at about 1:30 p.m.  His brother pushed his wheelchair and I pulled the wagon of belongings.  He was in high spirits and energetic.  We got to the apartment and he declared that he would walk from the car to the apartment without the use of the wheelchair.  He got out of the car and moseyed right along.  Once in the apartment he walked around, put his jacket away, and settled onto the couch.  After eating a little grapefruit and a few bites of pizza it was nap time for he and Luca.  We had 2 very late nights in a row and they are both lacking several hours of sleep.  Both boys slept for 2 hours while I went to the store to get groceries for our very naked fridge.  No, they were not alone....my mom is here :)

The next big event of the day was......Brent's had their community Thanksgiving dinner last night.  About 15 minutes before it started I asked Dillon if he wanted to come downstairs with us to get a little food.  He said, "Sure, I want to do that."  So off we all went.  He walked down to the dinner, played ping pong with Luca for about 15 minutes, and then got a few bites of different foods on his plate.  Everyone at Brent's was super excited to see him (they have not seen him in 2 months) and the extra attention was a bit overwhelming.  Dillon ate some stuffing, turkey, and cranberries.  Then, very discretely, he gave me the signal that he was "done".  I swept him away without a big fuss back up to the apartment.  Nana and Luca hung out downstairs a while longer and then joined Dillon and I in the living room from a little TV time on the couch.

Dillon was able to take all 14 of his meds last night.  He did get a bit woozy but they stayed down.  Off to bed at 9:30 with TPN running overnight.

Sean is still in Pagosa with this parents.  He is trying to figure out if he can just come back up to Denver in a couple of days and have the weekend with us or if he needs to go back to Santa Fe to work.  He is feeling much better and Dillon's doctors gave him the okay to return after 48 hours without symptoms or fever.

Luca is happy to be here.  He misses us so much when he is in Santa Fe.  He is relaxed and happy to be in the arms of his big brother and mama.  He gave Dillon so many hugs when he first got here.....he is such a snugly lovey boy.

Nana will be here for the whole week or until Sean comes back.

Dillon does not have to return to the clinic until Monday so we have the whole week and weekend to ourselves.  Our goal is to get outside and get some fresh air and move our bodies.  Mr. Pickle is a much different kid than last time he was out of the hospital.  He is engaged, he has energy, he has motivation and interest in things, he has a small appetite with minimal nausea and nonexistent vomiting, he has more strength and mobility....this is a whole new chapter for us....getting our Dillon back this time.  We are all looking forward to some fun and relaxation.