Sunday, November 4, 2012
Dillon slept and slept and slept and slept today.....No joke. He did not get up until 2:30 p.m. and that was with some prodding. I did wake him a few times to....you guessed it....take pills and during the pill taking I kept taking his temperature thinking that maybe something was wrong, was he sick? He assured me that he felt fine other than being EXTREMELY tired. So I let him sleep. At 2:30 p.m. I woke him up to go to the bathroom and informed him that we needed to go to the store. We were out of some food items that are vitally important...cream for my coffee and mint tea for him :))) He hummed and hawed and finally got dressed. Off we went, via wheelchair, to Sprouts.
It was his first outing into the community since September 11, 2012, the day he started radiation and got admitted to the hospital. HURRAY DILLON!!! He informed me that he was going to wait in the car and then I informed him that he was doing no such thing. Out the wheelchair came from the back of the Land Cruiser. I hung my 2 grocery bags on the handles on the back and off we went. We bought a watermelon at his request (the other thing he wanted was fresh cherries...sorry buddy, no fresh cherries in Denver in November...I offered frozen and he groaned). We got the tea and the cream and some other stuff. We had quite a lot of people looking at us in the store. Not every day you see a bald boy in a wheelchair wearing a mask, I guess.
Anyway, he agreed that it was not as hard as he expected and he kinda liked being out and about...a little.
We got back to the apartment and we had some tea. Then the basketball game he wanted to see came on. I went about my business of cleaning, reading, talking on the phone, washing dishes, and he watched on the ipad with the occasional interjection...."Mom, you gotta see this..." His enthusiasm makes me so happy...just to hear it in his voice is the best gift of the day.
The rest of the stuff is the same: the pills, the nausea, the eating, etc.
My dad is heading up tomorrow and will be here by dinnertime. Dillon will love to have a basketball watching companion and I will love leaving the apartment and getting some fresh air and "alone time."
Tomorrow, Monday, we will be in the clinic almost all day. He has 6 hours of medication infusions and most likely (my prediction) some red blood cells. These medications are given on a schedule throughout the transplant and post transplant process (about every 3 weeks or so) and tomorrow is the day. We will pack the appropriate entertainment items, foods, beverages, and the ever so trusty pillow (he really hates those tiny little skinny plastic covered pillows at the hospital).
Gosh I wasn't aware that Dillon was even allowed to go to the store. Aren't they afraid of him catching something? Your dad will provide some nice alone time for you and great company for Dillon so that's a bonus visit for the both of you. Enjoy your freedom Shari as I know it's hard to get...Aunt Marilyn
ReplyDeleteThere is a risk when being in contact with anyone...even Sean and
DeleteLuca,because of their exposure out in the world. One thing is that he is required to wear a surgical mask at all times outside of our apartment. The other thing is that if we are going somewhere we must go at times that are the least busy. So no movies on Friday night but maybe a Tuesday morning matinee for example....and then he would have on his mask and I would bring the supply of disinfecting wipes and wipe down the chair and they even recommended take a blanket to cover the seat...so you see, we can go paces, we just to be a cautious as possible without having to live in a bubble (which would be fine with me if it ensured his safety....hehehe)
I almost asked about the mask but thought you'd have mentioned it if that were the case. I'm just glad you can get out at all when no one is there to give you a break. Marilyn
DeleteGood for you - getting him out to the store!!! Sometimes it is easier to let your mental self take over and talk yourself out of things like that (him being the one talking himself out of it). Glad you were able to get him going - makes a world of difference!!! It is the little things! Glad Tom will be there to give you a few moments to yourself, soak them up! Do something nice for Shari :)
ReplyDeleteI might go get the LONG overdue haircut that has been elusive thus far :))
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