Saturday, November 24, 2012
It is like a new life here at Brent's Place. Dillon is eating, playing, laughing, taking all of his meds without much trouble....not vomiting, not napping, not having nausea. Yesterday we went to GameStop to trade in a couple of games that he does not like for his DS that the hospital gave him.....then we went into target and he tried on several pairs of pants because he currently only has 2 pairs that fit. This is such a huge deal....even at his best Dillon truly dislikes trying on clothes of any sort, even things that he loves and desperately wants to own. The past 2 nights I have chosen not to hook up his TPN because he has eaten several times throughout the day, including regular meals with the family and even a bowl of popcorn last night during a movie. An absolute Dillon classic favorite is Caesar salad with homemade dressing (a modified version without the egg yokes, as he is not allowed to eat raw things)...this dressing is super garlicy, has plenty of anchovy, and is creamy. He has had that 2 days in a row. He takes a Tums beforehand to offset the possible garlic heartburn-type symptoms.
Sean has been well...better than well. All the extra sleep at his parents' home has done wonders for his energy....he is having a great time here with all of us.
We might go to another movie today. Cousin Miel told us that Wreck It Ralph is a great movie so we might go do that.
Today's big announcement......Luca is going to stay with Dillon and I for this entire week. He has begged and begged for a 2-week stay.....his main agenda is that he wants to be with me for my birthday, which is Wednesday. So Sean is heading home tomorrow and I get to keep my 2 little chickens. Denver has tons of holiday lights and activities and I thought we could do a few of these now (early in December) before they get too busy and crowded and unsafe for Mr. Pickle. We are all looking forward to the fun.
Dillon has lab work Monday and a clinic appointment. They will check all of his levels and re-inspect his rash (which is the same as before, no change at all...which is good right...it is not worse). On Wednesday he has his PET/CT scan...which he HATES because they have to access his port (you all remember the needle trauma at UNM so long ago). It will be great to have Luca here to distract him and keep him company. The reasoning behind the PET/CT is essentially a final check to make sure that there is no cancer activity anywhere in Dillon's body. No one thinks there is and no one expects to find anything but after his crazy start to this whole journey they just want to be triple sure that he is all clear.
Hey...a special shout out to THANE.....we got your package...AWESOME and we will be playing both of the games today. Thane, you are such a special friend and we miss you terribly!!!! We look forward to playing some basketball with you buddy!!!!
Hurray for all that we have to be thankful for this year and you guys are right at the top of the list!
ReplyDeleteSo glad to know that Dillon is feeling like himself and that the boys will have this nice long visit over your birthday week.
Lots of love to you all, enjoy the light displays in the big city.
Every day is one day closer to home, friends and family!!!
You are getting it done Shari!!
xx Anne
Gee how does Luca gt to be away from school for so long? We've got it here where nothing is excused...nothing including coming in to the Dr. Glad things are progressing on Dillon eating...hurrah!! Aunt Marilyn
ReplyDeleteGot to thinking about the anchovy for the Caesar salad...you might want to be careful of those are the are high in sodium...like off the chart. Makes you retain water, hard on kidneys....just a thought...marilyn
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