Fireworks

Wednesday, July 4, 2012

Dillon continues to have ups and downs both physically and emotionally.  I think I have talked enough about that for you to have an idea of what that means.  Tuesday was a down day on both fronts.  Big D just started the day grumpy and it went down hill from there.  We talked about the fact that this sort of thing happens to ALL of us....when we just wake up in a terrible mood and everything seems to exacerbate that and then some physical ailment might come into play and that seems worse than usual because of the grumpy bumpy....so that was D's day yesterday.  Nana and I handled it as best we could.....but the day ended, finally at 11:30 p.m. with restful sleep for many hours with only a couple of interruptions to go to the bathroom, but then right back to sleep.

Today is a new day!!!  Chipper, a little energetic.  Dillon helped me prepare our breakfast this morning.  We learned how to cook an omelet in the microwave....I know, it sounds weird and maybe gross...but good quality organic eggs and cheese beat the powdered pile of pale yellow slop they try to pass off as eggs on the cafeteria tray, even if they are nuked :))  So a couple of eggs with cheese and 2 peaches peeled and sliced.  Lovely meal and such a joy to have Dillon cracking those eggs for me this morning.

We have a big evening planned.  Dillon requested barbeque for our 4th of July dinner. So Sean and Luca will arrive at dinnertime with brisket, beans, and potato salad from one of our favorite local barbeque joints here in Albuquerque.  We will watch the fireworks from the big window in D's room and have a nice little picnic on the bed.  One of our chef angels has delivered several varieties of homemade ice cream this week....THANK YOU STACY!!!!!.  So Sean is going to ice those down and bring them as well......we are all looking forward to this little celebration together as a family.

The first day of the second type of chemo was yesterday. They started it at 6 p.m. and it ended at 8 a.m.  There are several different things that drip into Dillon's system and they each take an hour or two and then there is wait time in between with fluids and then the other meds to counteract some of the side effects...so it is a long process but for Dillon it is really no big deal.  A nurse comes in, changes the bag that is hanging on his pole, hooks up the new tubing, and then leaves....repeat...over and over.  It is not painful or uncomfortable per se.  As of this moment, the nausea has not set in.  He is, of course, very tired and weak, but that is manageable.  Even with all of that, my strong boy got up this morning after eating and said...."I need to go for a walk."  Mind you it is just a few yards down the hall and back...but he is taking seriously what the doctors are telling him about using his muscles a little.  Yeah Dillon, meeting the challenge head on!!!

Have a great day everyone....and when you see those sparkles in the sky tonight or hear them from across town....please send an extra powerful positive thought in our direction so we can continue this upswing :))

Happy Fourth of July