Friday, July 6, 2012
The fireworks celebration did not exactly go as planned. The good news first. Another family in the hospital brought cookies and punch and cupcakes for everyone. Dillon and Luca ventured out to their room and enjoyed some sweets. Now the not so good part.......the smell of the barbeque was intolerable to Dillon so we had to pack it up and eat it in the hall. By that time he was fairly nauseous and he did not want to eat the homemade ice cream either :((. The fireworks were supposed to start at 9 p.m. We waited and waited and waited......with tears in his eyes my sweet boy finally said, "I'm too tired, I can't wait any more. I need to go to bed." Sean and Luca left to drive back to Santa Fe. Dillon went to the bathroom, put on his pjs, and brushed his teeth. I got Dillon situated in bed, gave him a back rub, and put on soothing music. Just as he drifted off to sleep....I saw a flash. I turned and looked out the window and there, in the distance, were the fireworks. They were silent because they were miles away and beautiful. I sat on the edge of the bed and sob,bed, quiet body-wracking sobs.....I cannot believe he missed it. He tried so hard. We all tried so hard to make this a special, fun, memorable event, and there I was sitting in the dark, alone, watching the fireworks that my boy so looked forward to seeing.
I am taking a break from the hospital this weekend. I left yesterday afternoon with my Luca Bear. We had a nice dinner together and then early bed.
We will be home together until Sunday afternoon when I return to Big D.
Sean is on the "inside" doing the hospital thing.
I am going to take the next few days off from the blog so I can focus on my home.
Dillon is doing as well as can be expected with the poison running through his veins. If Sean calls me with any interesting or significant update I will get on and post...otherwise....see you next week.
FACT OF THE DAY: Non-Hodgkin Lymphoma occurs in 9 out of 1,000,000 children under the age of 15.
Just getting away from the scene is very beneficial for everyone involved. Rest, relax and enjoy you time away. Prayers are always coming your way and everyone in the family....love Aunt Marilyn
ReplyDeletei hope your time to refresh has been just that I know you are busy with other things during this time but I know it is a relief to get things done that you want to do to. So goo for you. I love you Shari and am thinking about you all the time, and praying for dillon and y ou all involved there to get better and make a brilliant recovery.
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