Wednesday, August 15, 2012

Everything going smoothly

Wednesday, August 15, 2012

Dillon's white count is presently almost 0....so he is very susceptible to infection right now.  He has to wear a mask when he leaves the house and we have to "interview" anyone coming to visit to be sure they are not sick or they have not been around anyone who has been sick in the past couple of weeks.

A shout out to the ladies at the Quilting shop in Santa Fe!!!!!

His energy is still low but otherwise smooth sailing.

Tomorrow is our first trip back to Albuquerque since discharge.  He will be getting blood work and a routine exam.  Basically just checking in.

Next week:
Monday ---  PET/CT scan at 9:30 and audiology at 2:30....that means ALLLLLL DAYYYYY hanging out at UNM.
Tuesday ---  Bone marrow aspirate and biopsy on both sides.
Wednesday ---- GFR (this is some sort of scan of the kidneys which involves injecting dye).

SIGGHHHH.  Lots of driving and lots of waiting.....

The results of all of this will tell us whether we are REALLY ACTUALLY going to Denver on the 27th.

My heart tells me that all of the results will be favorable and we will be off to the next step....but my pesky brain is plaguing the back of my thoughts with worries about unfavorable results.  I am TRYING to stay positive...but sometimes it is just SO VERY HARD!!!

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