In ICU...this may be it

 Saturday, August 4, 2012

I cannot begin to explain the sheer terror that we are feeling right now.  Overnight Big D went downhill....severely.  We don't know if we are going to lose him.  He vomited nonstop for hours, his sodium dropped to dangerous levels, his magnesium and ammonia are high...the result.....transfer to ICU immediately. He has to get stabilized to figure out what is causing all of the problems.   He is agitated, delirious, cannot speak clear words, cannot answer questions about pain or discomfort, cannot focus his eyes, pupils are not responding.He looks right past whoever is talking to him. We are right in his face, telling him we love him, telling him we are here...he doesn't hear, he doesn't respond, he is just screaming, screaming, screaming a gluttural, primitive, heart-wrenching scream . The entire ICU can hear him and all of the doctors on the floor avert their eyes when we walk by.  They are allowing the entire family to be in the room....they don't know if he is going to make it.  We did send Luca out...it is to scary....a family friend who lives in Albuquerque stopped by the hospital and grabbed him up.

Basically Dillon has neurotoxicity....toxins built up in his nervous system from the treatments, his tumors breaking down, the medications used to calm side effects of other medications.  They are not sure why this is happening and thus they cannot fix it just yet.   Lots of tests, lots of teams of doctors from all sorts of specialties trying to piece this together and get Dillon stable.   I know everyone is praying for Dillon regularly.....BUT IF YOU COULD PRAY EXTRA THE NEXT FEW DAYS THAT WOULD BE A GREAT BLESSING FOR ALL OF US.

And a special note to our dear sweet friend Faith.   You are just the most extraordinary young lady.  Our family is just amazed by your kindness, dedication and generosity.  You are one of the strongest supporters we have and I wanted to thank you for that Faith.!!!