Sunday, August 5, 2012
Dillon had an incredibly long day yesterday and through the first part of the night. He finally fell asleep after hours of agitation and I retreated to a close by hotel room to cry, scream, and sleep; Sean was on duty all night long. I just could not be there any more...I had to leave. It broke my heart to walk away from that room with my boy sleeping...not knowing if this would be the last time I saw him alive...but I had to leave...I was breaking down.
In the morning Big D was "back to normal." Talking, smiling, wanting to get into dad's bed to snuggle, but still very nauseous.
In swoops mama......eat a cracker, 2 ice chips, deep breathing, and distraction with ipad games.....he forgot about the nausea until the next significant wave hits.....repeat cracker, ice chips, breathing, distraction....another 30 minutes pass in relative comfort.
It is miraculous. These doctors saved my boy's life yesterday. The treatments that they gave him overnight finally
worked. His labs are normalizing enough that he is stable and safe. A
beautiful thing....Dillon does not remember ANYTHING from yesterday.
At about noon they announced that Dillon had stabilized enough to move back up to the 6th floor into a room that we have actually been in before....our favorite one so far. Who knew that we would be celebrating a hospital room as if it were a reward, an adventure, a treat. We were so relieved to be able to go down to the car, haul all the stuff back up (Sean did that, of course), and get ourselves back situated. Dillon's response...."This room is so much more comfortable." In fact this morning in the ICU he asked when he could go home. The doctors looked at him funny like....you are not going home for a good long while little buddy....and when D saw their expressions of confusion he reiterated that he really meant when can we go back upstairs to the special care unit. Upon entry....Mr. Pickle got a STANDING OVATION....clapping, whistling, tears, hugs....from the staff on the unit. It was very sweet and the energy was amazing.
SOOOOO, he is out of the woods. The dangerous, crazy, scary stuff of yesterday is over. Dillon is still severely ill both with nausea and some wacky things in this blood levels, but they should normalize with time. It looks like the power of prayer, love, amazing medicine, and the miracle of the human body wanting to correct itself has prevailed once again. THANK THE HEAVENS!!!! We had a terrible scare about 24 hours ago and we are all breathing a bit easier this evening....exhausted....but breathing.
I cannot tell you the path we take from here, as I am not sure. The doctors all meet every monday morning and tomorrow is one of their bimonthly teleconferences with the Denver team...so they are going to hammer out the details of the game plan for the next days/weeks in Dillon's case
A special shout out to the GUNDRY FAMILY!!!!! The generosity and love that flows from each of you is felt widely and deeply by each of us!!!! Dillon wants to know if you are going to use that lamb at the restaurant and if so...will you save him some.
I went home this afternoon with Luca. On Saturday afternoon we left in a rush so we had to come back home to get the stuff we had not packed up. I head back into the hospital tomorrow...I hand Luca off to Nana and Grampy, Sean goes to work, and I wait for the plan from the Oncology Team.
Our utmost gratitude for all of the loving power we felt flowing our way last night!!! You will never know how much that helps us both physical, spiritually, and emotionally.
great, great news! big hugs to all of you.
ReplyDeleteThank you Shari for keeping us all informed during your scary ride. You are so amazing, swooping in with crackers and distraction...super mom!!
ReplyDeleteLove you lots, your boys too!
xxxx Anne
So grateful that God heard our prayers!
ReplyDeleteShari So great that prayers are answered we'll keep on asking for help.
ReplyDeleteWhat a tough kid!!!! I know where he gets that ;)! I hope he can find enough distractions to conquer the nausea! That is so frustrating! Lots more prayers headed your way!!!
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